Nejsem l\u00e9ka\u0159 ani jin\u00fd terapeut. P\u00ed\u0161u \u201cjen\u201d o tom, jak\u00e9 tipy, \u00fakoly a pom\u016fcky jsem dostala od fyzioterapeut\u016f, ergoterapeut\u016f, psycholog\u016f, speci\u00e1ln\u00edch pedagog\u016f, logoped\u016f a soci\u00e1ln\u00edch pracovn\u00edk\u016f a l\u00e9ka\u0159\u016f<\/strong> a jakou s nimi m\u00e1m zku\u0161enost.<\/p>\n\n\n\n
Kdo jsem?<\/strong> Od roku 2020 bojuju s nemoc\u00ed, kv\u016fli kter\u00e9 jsem o hodn\u011b p\u0159i\u0161la<\/strong> Pad\u00e1n\u00ed j\u00eddla z pusy, \u0161patn\u00e1 ch\u016fze, nec\u00edt\u00edm teplo chlad ani epilaci a \u0159\u00edznut\u00ed. Kinkl\u00e1m se – vypad\u00e1m, jako by do m\u011b po\u0159\u00e1d n\u011bkdo strkal. Kdy\u017e se soust\u0159ed\u00edm, nebo jsem unaven\u00e1 mluv\u00edm jako robot. Pam\u011b\u0165, soust\u0159ed\u011bn\u00ed a dal\u0161\u00ed kognitivn\u00ed funkce jsou podpr\u016fm\u011brn\u00e9. Vydr\u017e\u00edm se soust\u0159edit 1-2 hodiny, jsem rychle unaven\u00e1. Kdy\u017e to p\u0159e\u017eenu, nechod\u00edm, nemluv\u00edm a zvrac\u00edm. Bol\u00ed m\u011b nohy a panty na hlav\u011b.<\/strong> To jsou n\u00e1sledky se kter\u00fdmi bojuju, nebo se u\u010d\u00edm \u017e\u00edt.<\/p>\n\n\n\n P\u00ed\u0161u blog<\/strong> Jestli chcete v\u011bd\u011bt, jak m\u00edt telefon p\u0159i ruce, kdy\u017e m\u00e1te 2hole, nebo pro\u010d Nintendo je m\u016fj tren\u00e9r na kognici a pro\u010d m\u00e1m v bat\u016f\u017eky \u010dinku, t\u0159eba v\u00e1m p\u0159ijdou zaj\u00edmav\u00e9 \u010dl\u00e1nky s m\u00fdmi vychyt\u00e1vkami. A jestli m\u00e1te vy svoje tipy a triky, klidn\u011b mi napi\u0161te a sd\u00edlejte, a\u0165 se m\u00e1me l\u00edp.<\/p>\n\n\n\n Toto je prostor pro v\u0161echny, kte\u0159\u00ed cht\u011bj\u00ed v\u011bd\u011bt v\u00edce o tom, jak si pomoct \u017e\u00edt s neurologick\u00fdm onemocn\u011bn\u00edm. Snad to, co jsem napsala te\u010f d\u00e1v\u00e1 v\u011bt\u0161\u00ed smysl a je to lep\u0161\u00ed, ne\u017e to bylo, no ne?<\/p>\n\n\n\n <\/p>\n","protected":false},"excerpt":{"rendered":" P\u00ed\u0161e se rok 2024 a j\u00e1 si u\u017e v\u00edc jak rok pohr\u00e1v\u00e1m s my\u0161lenkou za\u010d\u00edt ps\u00e1t o zku\u0161enostech se svou nemoc\u00ed. Vypad\u00e1 to, \u017ee jsem kone\u010dn\u011b sebrala odvahu. Jsem Lucka, je mi 37 let, bydl\u00edm v Praze, m\u00e1m p\u0159\u00edtele, nem\u00e1m d\u011bti a nem\u00e1m zv\u00ed\u0159ata, zato m\u00e1m jednu hodn\u011b blbou nemoc \u2026a n\u00e1pad na blog. V […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-768","page","type-page","status-publish","hentry","entry"],"_links":{"self":[{"href":"https:\/\/www.trefnos.org\/index.php?rest_route=\/wp\/v2\/pages\/768","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.trefnos.org\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.trefnos.org\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.trefnos.org\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.trefnos.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=768"}],"version-history":[{"count":4,"href":"https:\/\/www.trefnos.org\/index.php?rest_route=\/wp\/v2\/pages\/768\/revisions"}],"predecessor-version":[{"id":854,"href":"https:\/\/www.trefnos.org\/index.php?rest_route=\/wp\/v2\/pages\/768\/revisions\/854"}],"wp:attachment":[{"href":"https:\/\/www.trefnos.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=768"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
Nebo sp\u00ed\u0161, kdo jsem byla\u2026Sle\u010dinka na jehl\u00e1ch, pe\u010dliv\u011b p\u0159ipraven\u00e9 elegantn\u00ed \u0161aty na ka\u017ed\u00fd den, v\u017edy perfektn\u011b upraven\u00e1 a usm\u011bvav\u00e1. Korpor\u00e1tn\u011b nekorpor\u00e1tn\u00ed bytost, cupitaj\u00edc\u00ed po chodb\u00e1ch firmy s telefonem v ruce, dodavatelem u ucha a pe\u010dliv\u011b p\u0159ipraven\u00fdm \u0161anonem na dal\u0161\u00ed sch\u016fzku. Ambici\u00f3zn\u00ed. Na stole chaos, p\u00e1r dn\u00ed star\u00e9, \u0161pinav\u00e9, pr\u00e1zdn\u00e9 hrn\u00ed\u010dky od kafe, lahvi\u010dky se zbytkem Coly a rezerva 2-3 Redbully na nov\u00fd den. Pracovn\u00ed doba a nasazen\u00ed nem\u011bli limit. Prost\u011b v\u00fdkonov\u011b zam\u011b\u0159en\u00e1, nesmrteln\u00e1 – v\u0161echno zvl\u00e1dnu a je\u0161t\u011b jednou tolik, co ostatn\u00ed k tomu. M\u011bla jsem pr\u00e1ci sn\u016f (aspo\u0148 v m\u00fdch o\u010d\u00edch), chlapa sn\u016f a budoucnost p\u0159ed sebou. A\u017e na toho chlapa, je to v\u0161echno fu\u010d, teda alespo\u0148 v m\u00fdch o\u010d\u00edch. Jsem toti\u017e nemocn\u00e1, nevyl\u00e9\u010diteln\u011b a blb\u011b.<\/p>\n\n\n\n
\u00daVN Praha, neurologick\u00e9 odd\u011blen\u00ed \u2026j\u00e1 ale nev\u00edm, kde jsem, jsem hodn\u011b popleten\u00e1. Nohy okopan\u00e9 do krve, ale nec\u00edt\u00edm to, naj\u00edst se nem\u016f\u017eu, nefunguje mi ruka a netref\u00edm se do pusy, vydr\u017e\u00edm vzh\u016fru jen p\u00e1r des\u00edtek minut. Hor\u0161\u00edm se, k nev\u016fli person\u00e1lu se vyd\u00e1v\u00e1m na sama na z\u00e1chod, kde m\u011b nach\u00e1z\u00ed na zemi, \u00fapln\u011b mimo, mus\u00edm pod kamery. Spolubydl\u00edc\u00edch se u m\u011b a za ten m\u011bs\u00edc to\u010d\u00ed opravdu hodn\u011b. Tohle obdob\u00ed zn\u00e1m sp\u00ed\u0161 jen z vypr\u00e1v\u011bn\u00ed- nepamatuju si to. Dost\u00e1vala jsem se pr\u00fd dlouho z nev\u0115dom\u00ed, plenek, krmen\u00ed a progn\u00f3zy nejist\u00e9ho p\u0159e\u017eit\u00ed. Tohle bylo poprv\u00e9 a bohu\u017eel ne naposledy. M\u00e1m onemocn\u011bn\u00ed mozku.<\/p>\n\n\n\n
Proto\u017ee nejsem na alternativn\u00ed medic\u00ednu, hled\u00e1m ke v\u0161emu vysv\u011btlen\u00ed v odborn\u00fdch \u010dl\u00e1nc\u00edch a studi\u00edch<\/strong>. V\u00edm, \u017ee v\u0161echno, co se mozku t\u00fd\u010de a t\u011bla jako takov\u00e9ho je propojen\u00e9, a tak chci pochopit, pro\u010d mi m\u00e1 t\u0159eba vibra\u010dn\u00ed tr\u00e9nink pomoct na necitlivost a je\u0161t\u011b k tomu zlep\u0161it ch\u016fzi?<\/p>\n\n\n\n
Ide\u00e1ln\u00ed by bylo, kdyby to nikdo ne\u010detl, pak byste byli v\u0161ichni zdrav\u00ed. Ale tak to nen\u00ed, co? Proto \u201cTref nos\u201d<\/strong>. Neurologi\u010dt\u00ed pacienti v\u011bd\u00ed. A pro ty, kte\u0159\u00ed ne a \u010dtou blog, proto\u017ee\u2026 no\u2026 nev\u00edm pro\u010d\u2026Je to jedna z metod vy\u0161et\u0159ov\u00e1n\u00ed, \u017ee m\u00e1te mozek v po\u0159\u00e1dku.<\/p>\n\n\n\n![\"\"](\"https:\/\/www.trefnos.org\/wp-content\/uploads\/2024\/09\/20240925_175632-02-1024x1024.jpeg\")
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